Rett Syndrome is a genetic neurological disorder that occurs almost exclusively in girls. After birth, girls with Rett Syndrome have 6 to 18 months of apparently normal development before suffering severe, rapid degeneration resulting in problems with language and communication, learning, coordination, eating and other brain functions. Girls can ultimately lose the functioning use of their hands, walking ability and speech. Imagine having the effects of Parkinson’s, Cerebral Palsy, Autism and Epilepsy all in one little girl. For Evelyn, this is her daily reality.
Please join us for an evening of hope. Girl Power 2 Cure is an amazing organization that has three main goals. To Support, To Educate, and most importantly, To Cure. Through their partnership with the Rett Syndrome Research Trust, they are on a Roadmap to a Cure. Research is showing that we are closer than ever to finding a cure for Rett and we believe that with your help, we will have a cure for Evelyn in her lifetime.